Publications

  • Delobel-Ayoub M, Klapouszczak D, Abid A, Ehlinger V, Arnaud C. Registre des handicaps del’enfant en Haute-Garonne. Les troubles du spectre de l’autisme de 2003 à 2023. Résultats synthétiques. Mars 2025. 16 pages
  • Delobel-Ayoub M, Ehlinger V, Klapouszczak D, Troha Gergeli A, Sellier E, Hollody K, Virella D, Vik T, Perret C, Vidart d’Egurbide Bagazgoitia N, Horridge K, Arnaud C. Postneonatal Cerebral Palsy in Europe: Prevalence and Clinical Characteristics According to Contributory Events: An SCPE Study. Paediatr Perinat Epidemiol. 2025.DOI: 10.1111/ppe.13164
  • Pudig L, Delobel-Ayoub M, Horridge K, Gergeli AT, Sellier E, Ehlinger V, Hollody K, Virella D, Vik T, Arnaud C. Classification of events contributing to postneonatal cerebral palsy: Development, reliability, and recommendations for use. Dev Med Child Neurol. 2023 Jul 24. doi:10.1111/dmcn.15710.
  • Papavasiliou A, Hollung SJ, Virella D, Delobel–Ayoub MD, Hollódy K, Neubauer D, Gergeli AT, Arnaud C. Perspectives of cerebral palsy experts on access to health care in Europe. Eur J Paediatr Neurol. 2024.52:20-28. doi: 10.1016/j.ejpn.2024.06.002.
  • Ehlinger V, Guernec G, Perret C, Vidart N, Arnaud C, on behalf of the SPARCLE group. Association Between Physical, Social, and Attitudinal Environments and Quality of Life in Adolescents With Cerebral Palsy: Insights From the SPARCLE Cross-Sectional Study. Arch Rehabil Res Clin Transl. 2024;000:100411. doi.org/10.1016/j.arrct.2024.100411
  • Guyard A, Fauconnier J, Muehlan H, Cytera C, Markwart H, Himmelmann K, Schmidt S, Duffaut C, Arnaud C, Thyen U. Differences in participation between young adults with cerebral palsy and their peers: A cross-sectional multicentre European study. Disabil Health J. 2024.17(2):101554. doi: 10.1016/j.dhjo.2023.101554.
  • Perret C, Alvarelhão JJM, Pennington L, Ehlinger V, Duffaut C, Arnaud C, Vidart d’Egurbide Bagazgoïtia N. Assessing the Adequacy of the Physical, Social, and Attitudinal Environment to the Specific Needs of Young Adults With Cerebral Palsy: The European Adult Environment Questionnaire. Arch Phys Med Rehabil. 2024.105(5):906-920. doi: 10.1016/j.apmr.2023.11.012.
  • Perret C, Ehlinger V, Shourick J, Alvarelhão JJM, Himmelmann K, Delobel-Ayoub M, Vidart d’Egurbide Bagazgoïtia N, Arnaud C. How does the environmental inadequacy mediate the effect of functional limitations on participation restrictions in young adults with cerebral palsy? Disab Health J. 2024:101736. doi: 10.1016/j.dhjo.2024.101736.
  • Rioual J, Perret C, Arnaud C, Vidart d’Egurbide Bagazgoïtia N. Unmet environmental needs and unmet healthcare needs in a population of young adults with cerebral palsy: what the SPARCLE study tells us. Front Rehabil Sci. 2024.5:1294999. doi: 10.3389/fresc.2024.1294999.
  • Arnaud, C., V. Ehlinger, A. Perraud, A. Kinsner-Ovaskainen, D. Klapouszczak, K. Himmelmann, M. Petra, G. Rackauskaite, M. Lanzoni, M. J. Platt and M. Delobel-Ayoub. Public health indicators for cerebral palsy: A European collaborative study of the Surveillance of Cerebral Palsy in Europe network. Paediatr Perinat Epidemiol. 2023. Epub 2023/02/02. doi: 10.1111/ppe.12950. PubMed PMID: 36722642.
  • Horber V, Andersen GL, Arnaud C, De La Cruz J, Dakovic I, Greitane A, Hensey O, Himmelmann K, Hollody K, Horridge K, Künzle CT, Marcelli M, Ortibus E, Papavasiliou A, Perra O, Platt MJ, Rackauskaite G, Sigurdardottir S, Troha Gergeli A, Virella D, Krägeloh-Mann I, Sellier E. Prevalence, Clinical Features, Neuroimaging, and Genetic Findings in Children With Ataxic Cerebral Palsy in Europe. Neurology. 2023 Dec 12;101(24):e2509-e2521. doi: 10.1212/WNL.0000000000207851.
  • Vidart d’Egurbide Bagazgoïtia N, Perret C, Himmelmann K, Thyen U, Ehlinger V, Duffaut C, Arnaud C, Sentenac M. Employment and higher education in young adults with cerebral palsy: a cross-sectional analysis of the SPARCLE study. BMJ Public health. November 2023. doi:10.1136/bmjph-2023-000141
  • McIntyre, S., S. Goldsmith, A. Webb, V. Ehlinger, S. J. Hollung, K. McConnell, C. Arnaud, H. Smithers-Sheedy, M. Oskoui, G. Khandaker, K. Himmelmann and C. P. P. G. Global (2022). ‘Global prevalence of cerebral palsy: A systematic analysis.’ Dev Med Child Neurol. 2022. Epub 2022/08/12. doi: 10.1111/dmcn.15346.
  • Delobel-Ayoub M, Ehlinger V, Klapouszczak D, Duffaut C, Arnaud C, Sentenac M. ‘Prevalence and characteristics of children with cerebral palsy according to socioeconomic status of areas of residence in a French department’. PLoS One. 2022;17(5):e0268108. Epub 2022/05/20. doi: 10.1371/journal.pone.0268108.
  • Arnaud C, Ehlinger V, Delobel-Ayoub M, Klapouszczak D, Perra O, Hensey O, Neubauer D, Hollody K, Virella D, Rackauskaite G, Greitane A, Himmelmann K, Ortibus E, Dakovic I, Andersen G L, Papavasiliou A, Sellier E, Platt M J and Krageloh-Mann I. 2021. ‘Trends in Prevalence and Severity of Pre/Perinatal Cerebral Palsy Among Children Born Preterm From 2004 to 2010: A SCPE Collaboration Study’, Front Neurol, 12: 624884. doi: 10.3389/fneur.2021.624884
  • Arnaud C, Duffaut C, Fauconnier J, Schmidt S, Himmelmann K, Marcelli M, Pennington L, Alvarelhão J, Cytera C, Rapp M, Ehlinger V, Thyen U. ‘Determinants of participation and quality of life of young adults with cerebral palsy: longitudinal approach and comparison with the general population – SPARCLE 3 study protocol’. BMC Neurol. 2021. 21(1):254. doi:10.1186/s12883-021-02263-z
  • Sentenac M, Rapp M, Ehlinger V, Colver A, Thyen U, Arnaud C. ‘Disparity of child/parent-reported quality of life in cerebral palsy persists into adolescence’. Dev Med Child Neurol. 2021.63(1):68-74. doi: 10.1111/dmcn.14638.
  • Vidart d’Egurbide Bagazgoïtia N, Ehlinger V, Duffaut C, Fauconnier J, Schmidt-Schuchert3, Thyen U, Himmelmann K, Marcelli M, Arnaud C. Quality of Life in Young Adults With Cerebral Palsy: A Longitudinal Analysis of the SPARCLE Study. Front. Neurol. 2021. 12:733978. doi.org/10.3389/fneur.2021.733978
  • Schmidt S, Markwart H, Rapp M,  Guyard A, Arnaud C, Fauconnier J, Thyen U, Hahm S, Vidart d’Egurbide Bagazgoïtia N, ; Muehlan H.  ‘Quality of life and mental health in emerging adults with cerebral palsy compared to the general population’. Health Qual Life Outcomes. 2022;20(1):61. Epub 2022/04/04. doi: 10.1186/s12955-022-01961-7.
  • Horber V, Grasshoff U, Sellier E, Arnaud C, Krageloh-Mann I and Himmelmann K. 2020. ‘The Role of Neuroimaging and Genetic Analysis in the Diagnosis of Children With Cerebral Palsy’, Front Neurol, 11: 628075. doi: 10.3389/fneur.2020.628075
  • Perra O, Rankin J, Platt MJ, Sellier E, Arnaud C, De La Cruz J, Krägeloh-Mann I, Sweet DG, Bjellmo S. Decreasing cerebral palsy prevalence in multiple births in the modern era: a population cohort study of European data. Arch Dis Child Fetal Neonatal Ed. 2020 Aug 26:fetalneonatal-2020-318950. doi: 10.1136/archdischild-2020-318950. Epub ahead of print
  • Delobel-Ayoub M, Saemundsen E, Gissler M, Ego A., Moilanen I, Ebeling  H, Rafnsson V, Klapouszczak D, Thorsteinsson E, Arnaldsdóttir KM, Roge B, Arnaud C, Schendel D. Prevalence of Autism Spectrum Disorder in 7-9-Year-Old Children in Denmark, Finland, France and Iceland: A Population-Based Registries Approach Within the ASDEU Project. J Autism Dev Disord. 2020. 50 (3), 949-959. doi: 10.1007/s10803-019-04328-y
  • Delobel-Ayoub M, Klapouszczak D, Tronc C, Sentenac M, Arnaud C, Ego A. La prévalence des TSA continue de croître en France : données récentes des registres des handicaps de l’enfant. Bull Epidémiol Heb. 2020. (6-7):128-135.  Lire
  • Himmelmann K, Påhlman M, Andersen GL, Vik T, Virella D, Horridge K, Neubauer D, Arnaud C, Rackauskaite  G, de la Cruz J. Access to Intrathecal Baclofen Treatment for Children with Cerebral Palsy in European Countries: An SCPE Survey Reveals Important Differences. Neuropediatrics. 2020;51(2):129‐134. doi: 10.1055/s-0040-1701659 
  • Horber V, Fares A, Platt MJ, Arnaud C, Krägeloh-Mann I, Sellier E. Severity of Cerebral Palsy. The Impact of Associated Impairments. Neuropediatrics. 2020. 51(2):120-128. doi: 10.1055/s-0040-1701669
  • Horber V, Sellier E, Horridge K,  Rackauskaite G, Andersen GL, Virella D, Ortibus E, Dakovic I, Hensey O, Radsel A, APapavasiliou A, Cruz De la  J, Arnaud C, Krägeloh-Mann  I, Himmelmann K. The Origin of the Cerebral Palsies: Contribution of Population-Based Neuroimaging Data. Neuropediatrics. 2020. 51(2):113-119. doi: 10.1055/s-0039-3402007
  • Sentenac M, Rapp M, Ehlinger V, Colver A, Thyen U, Arnaud C. Disparity of child/parent-reported quality of life in cerebral palsy persists into adolescence [published online ahead of print, 2020 Jul 25]. Dev Med Child Neurol. 2020. doi: 10.1111/dmcn.14638
  • Delobel-Ayoub M, Klapouszczak D, van Bakel MME, Horridge K,  Sigurdardottir S, Himmelmann K, Arnaud C. Prevalence and characteristics of autism spectrum disorders in children with cerebral palsy. Dev Med Child Neurol. 2017. 59(7):738–742. doi:10.1111/dmcn.13436
  • Guyard A, Michelsen SI, Arnaud C, Fauconnier J. Family adaptation to cerebral palsy in adolescents : A European multicenter study. Res Dev Disabil. 2017. 61:138-150. doi: 10.1016/j.ridd.2016.11.010
  • Himmelmann K, Horber V, De La Cruz J, Horridge K, Mejaski-Bosnjak V, Hollody K, Krägeloh-Mann I; SCPE Working Group (Arnaud C. collaborator). MRI classification system (MRICS) for children with cerebral palsy: development, reliability, and recommendations.  Dev Med Child Neurol. 2017. 59(1):57-64. doi: 10.1111/dmcn.13166
  • Rapp M, Eisemann N, Arnaud C, Ehlinger V, Fauconnier J, Marcelli M, Michelsen SI, Nystrand M, Colver A, Thyen U. Predictors of parent-reported quality of life of adolescents with cerebral palsy: A longitudinal study. Res Dev Disabil. 2017. 62:259-270. doi: 10.1016/j.ridd.2016.12.005
  • Sellier E, Platt MJ, Andersen GL, Krägeloh-Mann I, De La Cruz J, Cans C; Surveillance of Cerebral Palsy Network (Arnaud C collaborator). Decreasing prevalence in cerebral palsy: a multi-site European population-based study, 1980 to 2003. Dev Med Child Neurol. 2016. 58(1):85-92. doi: 10.1111/dmcn.12865
  • Colver A, Rapp M, Eisemann N, Ehlinger V, Thyen U, Dickinson HO, Parkes J, Parkinson K, Nystrand M, Fauconnier J, Marcelli M, Michelsen SI, Arnaud C. Self-reported quality of life of adolescents with cerebral palsy: a cross-sectional and longitudinal analysis. Lancet. 2015. 385(9969):705–716. doi: 10.1016/S0140-6736(14)61229-0
  • Dang VM, Colver A, Dickinson HO, Marcelli  M, Michelsen  SI, Parkes  J, Parkinson  K, Rapp M, Arnaud  C, Nystrand  M, Fauconnier J. Predictors of participation of adolescents with cerebral palsy: A European multi-centre longitudinal study. Res Dev Disabil. 2015;36C:551-564. doi: 10.1016/j.ridd.2014.10.043
  • Delobel-Ayoub M, Ehlinger V, Klapouszczak D, Maffre T, Raynaud JP, Delpierre C, Arnaud C. Socioeconomic Disparities and Prevalence of Autism Spectrum Disorders and Intellectual Disability. PLoS One. 2015. 10(11):e0141964. doi: 10.1371/journal.pone.0141964
  • Delobel-Ayoub M, Klapouszczak D, Cans C, Arnaud C, van Bakel ME. Données épidémiologiques sur les surdités bilatérales sévères et profondes en France pour les générations 1997 à 2005. Bull Epidémiol Hebd. 2015. (42-43):781-788. Lire
  • van Bakel MM, Delobel-Ayoub M, Cans C, Assouline B, Jouk PS, Raynaud Ph, Arnaud C. Low but increasing prevalence of autism spectrum disorders in a French area from register-based data. J Autism Dev Disord. 2015. 45(10):3255–3261. doi: 10.1007/s10803-015-2486-6
  • van Bakel M, Einarsson I, Arnaud C, Craig S, Michelsen SI, Pildava S, Uldall P, Cans C. Monitoring the prevalence of severe intellectual disability in children across Europe: feasibility of a common database. Dev Med Child Neurol. 2014. 56(4):361-369. doi: 10.1111/dmcn.12281
  • Michelsen SI, Flachs EM, Damsgaard MT, Parkes J, Parkinson K, Rapp  M, Arnaud C, Nystrand M, Colver A, Fauconnier  J, Dickinson  HO, Marco Marcelli  M, Uldall P. European study of frequency of participation of adolescents with and without cerebral palsy. Eur J Paediatr Neurol. 2014. 18(3):282-294. doi:10.1016/j.ejpn.2013.12.003
  • Sentenac M, Ehlinger V, Michelsen SI, Marcelli M, Dickinson HO, Arnaud C. Determinants of inclusive education of 8-12 year-old children with cerebral palsy in 9 European regions. Res Dev Disabil. 2013. 34(1):588-595. doi: 10.1016/j.ridd.2012.09.019
  • Germany L, Ehlinger V, Klapouszczak D, Delobel M, Hollódy K, Sellier E, De La Cruz J, Alberge C, Genolini C, Arnaud C. Trends in prevalence and characteristics of post-neonatal cerebral palsy cases: a European registry-based study. Res Dev Disabil. 2013. 34(5):1669-1677. doi: 10.1016/j.ridd.2013.02.016
  • Parkinson KN, Dickinson HO, Arnaud C, Lyons A, Colver A; SPARCLE group. Pain in young people aged 13 to 17 years with cerebral palsy: cross-sectional, multicentre European study. Arch Dis Child. 2013. 98(6):434-440. doi: 10.1136/archdischild-2012-303482

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